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The Paige Elizabeth Keely  Foundation

Signed in as:

filler@godaddy.com

  • Home
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  • AVM Screening Info
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  • Donate
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  • Contact Us
  • Our Sponsors
  • Inaugural Golf Classic
  • Previuos Events
  • 2022 Gala Info
  • Community Awareness
  • Help Raise Awareness
  • 2023⚾️Tournament Info
  • Paiges Law NY

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Paiges Law NY

Early Detection & Awareness Would Have Saves Paiges Life!

What is Paiges Law

Senator Mario Mattera, Smithtown, NY 2nd Senate District of the New York State Senate Gina Keely

“Paiges Law”

2022

The Paige Elizabeth Keely Foundation Inc. 

To Amend the New York State Public Health Law, in relation to New York State, New Born Screening Program by providing further comprehensive Pediatric Screening to the Mandated New York State Newborn Screening Panel by adding, HHT sequencing

(6 genes) - Most comprehensive panel for Hereditary Hemorrhagic Telangiectasia (HHT) and TAAD sequencing (35genes) associated with thoracic aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.

To provide for further comprehensive Prenatal Screening Awareness to expecting mothers about Genetic Testing and awareness of being a

potential carrier of Hereditary Hemorrhagic Telangiectasia (HHT) and (TAAD), Marfan syndrome, or related disorders. HHT, sequencing (6 genes)-Most comprehensive panel for hereditary hemorrhagic telangiectasia. TAAD sequencing (35genes) associated with thoracic aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.

To provide for further comprehensive Awareness, Education & Training annually in our Schools & for First Responders about & how to potentially identify and properly handle a possible Brain AVM (Arteriovenous Malformations), Brain Aneurysm and Stroke.

To make an addition to the current New York State, Kindergarten Registration process by adding comprehensive AVM and Aneurysm Awareness educational information to inform families about Genetic Testing and awareness of being a potential carrier of Hereditary Hemorrhagic Telangiectasia (HHT) and (TAAD), Marfan syndrome, or related disorders. HHT, sequencing (6 genes)- Most comprehensive panel for hereditary hemorrhagic telangiectasia. TAAD sequencing (35genes) associated with thoracic

aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.

NY State Newborn Screening Panel

To Amend the New York State Public Health Law, in relation to New York State, New Born Screening Program by providing further comprehensive Pediatric Screening to the Mandated New York State Newborn Screening Panel by adding, HHT sequencing

(6 genes) - Most comprehensive panel for Hereditary Hemorrhagic Telangiectasia (HHT) and TAAD sequencing (35genes) associated with thoracic aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.

Learn more Bout the current NY State Newborn Screening
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The Paige Elizabeth Keely Foundation

Saint James, New York 11780, United States

6317420930

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2023 AVM Awareness⚾️Tournament - Sponsorship & Registration

3rd Annual Paige Keely Memorial baseball tournament 

2023 AVM⚾️Tournament Info