Signed in as:
filler@godaddy.com
Signed in as:
filler@godaddy.com
“Paiges Law”
2022
The Paige Elizabeth Keely Foundation Inc.
To Amend the New York State Public Health Law, in relation to New York State, New Born Screening Program by providing further comprehensive Pediatric Screening to the Mandated New York State Newborn Screening Panel by adding, HHT sequencing
(6 genes) - Most comprehensive panel for Hereditary Hemorrhagic Telangiectasia (HHT) and TAAD sequencing (35genes) associated with thoracic aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.
To provide for further comprehensive Prenatal Screening Awareness to expecting mothers about Genetic Testing and awareness of being a
potential carrier of Hereditary Hemorrhagic Telangiectasia (HHT) and (TAAD), Marfan syndrome, or related disorders. HHT, sequencing (6 genes)-Most comprehensive panel for hereditary hemorrhagic telangiectasia. TAAD sequencing (35genes) associated with thoracic aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.
To provide for further comprehensive Awareness, Education & Training annually in our Schools & for First Responders about & how to potentially identify and properly handle a possible Brain AVM (Arteriovenous Malformations), Brain Aneurysm and Stroke.
To make an addition to the current New York State, Kindergarten Registration process by adding comprehensive AVM and Aneurysm Awareness educational information to inform families about Genetic Testing and awareness of being a potential carrier of Hereditary Hemorrhagic Telangiectasia (HHT) and (TAAD), Marfan syndrome, or related disorders. HHT, sequencing (6 genes)- Most comprehensive panel for hereditary hemorrhagic telangiectasia. TAAD sequencing (35genes) associated with thoracic
aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.
To Amend the New York State Public Health Law, in relation to New York State, New Born Screening Program by providing further comprehensive Pediatric Screening to the Mandated New York State Newborn Screening Panel by adding, HHT sequencing
(6 genes) - Most comprehensive panel for Hereditary Hemorrhagic Telangiectasia (HHT) and TAAD sequencing (35genes) associated with thoracic aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.
The Paige Elizabeth Keely Foundation
Saint James, New York 11780, United States
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The Paige Keely Foundation
Third
Benefit Gala
WEDNESDAY ~ OCTOBER 9TH, 2024
Bourne Mansion
OAKDALE, NEW YORK 11769
Honorees
DR. SIMA MOFAKHAM
DR. CHARLES MIKELL
DR. MICHAEL EGNOR