The Paige Elizabeth Keely  Foundation
  • Sign In
  • Create Account

  • Bookings
  • Orders
  • My Account
  • Signed in as:

  • filler@godaddy.com


  • Bookings
  • Orders
  • My Account
  • Sign out

  • Home
  • About Us
  • 2024 Events
    • 2024 Third Benefit Gala
    • 2024 Golf Classic.
  • AVM Awareness Project
  • Paiges Law NY
  • Shop
  • Our Sponsors
  • Donate
  • Photos & Videos
  • AVM Screening Info
  • Contact Us
  • Help Raise Awareness
  • Previous Events
  • More
    • Home
    • About Us
    • 2024 Events
      • 2024 Third Benefit Gala
      • 2024 Golf Classic.
    • AVM Awareness Project
    • Paiges Law NY
    • Shop
    • Our Sponsors
    • Donate
    • Photos & Videos
    • AVM Screening Info
    • Contact Us
    • Help Raise Awareness
    • Previous Events

The Paige Elizabeth Keely  Foundation

Signed in as:

filler@godaddy.com

  • Home
  • About Us
  • 2024 Events
    • 2024 Third Benefit Gala
    • 2024 Golf Classic.
  • AVM Awareness Project
  • Paiges Law NY
  • Shop
  • Our Sponsors
  • Donate
  • Photos & Videos
  • AVM Screening Info
  • Contact Us
  • Help Raise Awareness
  • Previous Events

Account


  • Bookings
  • Orders
  • My Account
  • Sign out


  • Sign In
  • Bookings
  • Orders
  • My Account

Paiges Law NY

Early Detection & Awareness Would Have Saves Paiges Life!

What is Paiges Law

Senator Mario Mattera, Smithtown, NY 2nd Senate District of the New York State Senate Gina Keely

“Paiges Law”

2022

The Paige Elizabeth Keely Foundation Inc. 

To Amend the New York State Public Health Law, in relation to New York State, New Born Screening Program by providing further comprehensive Pediatric Screening to the Mandated New York State Newborn Screening Panel by adding, HHT sequencing

(6 genes) - Most comprehensive panel for Hereditary Hemorrhagic Telangiectasia (HHT) and TAAD sequencing (35genes) associated with thoracic aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.

To provide for further comprehensive Prenatal Screening Awareness to expecting mothers about Genetic Testing and awareness of being a

potential carrier of Hereditary Hemorrhagic Telangiectasia (HHT) and (TAAD), Marfan syndrome, or related disorders. HHT, sequencing (6 genes)-Most comprehensive panel for hereditary hemorrhagic telangiectasia. TAAD sequencing (35genes) associated with thoracic aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.

To provide for further comprehensive Awareness, Education & Training annually in our Schools & for First Responders about & how to potentially identify and properly handle a possible Brain AVM (Arteriovenous Malformations), Brain Aneurysm and Stroke.

To make an addition to the current New York State, Kindergarten Registration process by adding comprehensive AVM and Aneurysm Awareness educational information to inform families about Genetic Testing and awareness of being a potential carrier of Hereditary Hemorrhagic Telangiectasia (HHT) and (TAAD), Marfan syndrome, or related disorders. HHT, sequencing (6 genes)- Most comprehensive panel for hereditary hemorrhagic telangiectasia. TAAD sequencing (35genes) associated with thoracic

aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.

NY State Newborn Screening Panel

To Amend the New York State Public Health Law, in relation to New York State, New Born Screening Program by providing further comprehensive Pediatric Screening to the Mandated New York State Newborn Screening Panel by adding, HHT sequencing

(6 genes) - Most comprehensive panel for Hereditary Hemorrhagic Telangiectasia (HHT) and TAAD sequencing (35genes) associated with thoracic aortic aneurysms and dissections (TAAD), Marfan syndrome, or related disorders.

Learn more Bout the current NY State Newborn Screening
  • 2024 Third Benefit Gala
  • AVM Awareness Project
  • Privacy Policy
  • Terms and Conditions

The Paige Elizabeth Keely Foundation

Saint James, New York 11780, United States

Powered by

This website uses cookies.

We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

DeclineAccept